As a fellow sufferer I can assure you, you are not alone. This condition is life changing rather than life threatening. For further information and help when discussing with your general practitioner or rheumatologist please read on….

Fibromyalgia is a chronic condition which affects the muscles and not the joints. In the past the condition was often diagnosed as muscular rheumatism or fibrositis and in some cases a degenerative disease like multiple sclerosis which in fact is a complete misdiagnosis.
Fibromyalgia although very painful is not life threatening or progressive and does not cause any permanent damage to tissue, bones, muscles or joints.
No outward signs may be evident but the sufferer usually feels awful and describing their pain is difficult for some people to comprehend.
Some people suffer a different cycle but the main chain of events is outlined below:
The first port of call would be a general practitioner who can sometimes diagnose fibromyalgia but more often than not you will be seen by either a pain management specialist or even a rheumatologist.
The most frequent symptoms include:
In some cases the sufferer will feel pain in the morning but more often than not the pain peaks with more activity. It may be particularly bad down one side of the body or more localised in the back, neck and limbs and in extreme cases the pain is all over without prejudice.
Fatigue is the most predominate feeling which sufferers describe and consists of all over tiredness and lack of energy. The other thing to note is some sufferers have difficulty climbing the stairs, doing household chores and even going shopping.
Less frequent symptoms include:
Poor circulation – usually described as tingling or pins and needles of the hands and feet.
Headache
Irritability or feeling low and weepy
Forgetfulness and poor concentration
Feeling an urgent need to pass water
Irritable bowels with bouts of diarrhoea and constipation combined with abdominal pains and cramps.
Of course symptoms like these have other causes and your general practitioner will want to do further tests to eliminate some of these symptoms.

With fibromyalgia affecting people in different ways in order for your doctor to make a sound diagnosis he will try to ascertain whether your symptoms are from another illness.
There are similar symptoms with ME – myalgic encephalomyelitis, some doctors call this ‘chronic fatigue syndrome’ and it is not to be confused with fibromyalgia as ME usually follows after a viral infection.
The cause of fibromyalgia is unknown but a clearer understanding between physical and mental aspects are being learned everyday.
Research into fibromyalgia has been stimulated by the discovery of specific tender points around the body and in studying sleep patterns and sleep disturbance.
Brainwave studies EEG – electroencephalograph during sleep have revealed that people with fibromyalgia ofte.n lose deep sleep which has a knock on effect for the following day.

Deep sleep is our bodies way of dealing with and compartmentalising the days events without this the sufferer usually feels dreadful the following day.
One things doctors often do is say the symptoms are psychosomatic or psychogenic and then are relieved when the patient accepts his psychological cause rather than a true diagnosis of fibromyalgia.

The known treatments are with drugs and these fit into the family of SSRI’s AND SNRI’s and also with painkillers.
Selective Serotonin Re uptake Inhibitors and Serotonin Norephinephrine Re uptake Inhibitors which your doctor may try several until you have both decided which one suits you best in managing your symptoms.
It has to be stressed this in not a life threatening condition just a life upsetting and painful one.
A recent study showed that a female to male incidence ration of 9:1 showed women to be the main sufferers, the medical profession has no explanation for this but concluded that the majority of diagnoses were of people aged between 20 -50 although onset can occur in childhood.
THE DO’S AND DON’TS WHEN DEALING WITH FIBROMYALGIA
1. Research more about fibromyalgia, knowing someone else who suffers on the same level can often be a burden lifter.
2. Talk to your friends, family and your doctor, the more people who know about your illness and symptoms the easier it is for them to deal with when you are having a bad day.
3. Try the medication offered by your doctor, it may take two or even three different drugs for you to notice a change in your symptoms and go for regular check ups this way the doctor can monitor you correctly.
4. Don’t drink alcohol, tea or coffee late at night as they will disturb your sleep. Relaxation and gentle exercise may help you get to sleep.
5. Learn to relax. Take a soak in the tub while listening to music or even listen to self help relaxation tapes. Learn some relaxation techniques and in the long run these will help. Take up a new hobby which is going to distract from the everyday drudge.
6. Find effective way ways to communicate your feelings like anger etc, ask your doctor to refer you to a cognitive behavioural therapist.
7. Try to sort out unhappiness at home and in the workplace.
8. Eat healthily and manage your weight.
9. Join a group which deals with pain and low self esteem.
10. Don’t think this is your life and you will deal with it in your own way because this has been proven not to work and in some cases can make the symptoms worse. Ignoring the symptoms will impact on your everyday life and also your health in general in ways you do not realise.
If in doubt about anything speak to your general practitioner who will be able to advise you on suitable drugs, talking therapy and general day to day management of your condition.
DO NOT EVER FEEL ALONE AS THERE ARE GROUPS WHO CAN ADVISE YOU AND GIVE MUCH NEEDED SUPPORT
IN THE USA PLEASE TRY
IN THE UK PLEASE TRY
GLOSSARY
CBT – Cognitive Behavioural Therapy is talking therapy based on the assumption that a person’s thought patterns and his emotional and behavioural reactions are learned and therefore can be changed. This kind of therapy deals with what is happening right now and how the patient is dealing with it. The therapist will give you the tools to help you change your thought process and in turn your outlook. It will occasionally deal with past issues but CBT deal with what is affecting you today.
EEC – Electroencephalography is a technical recording dealing with the brains electrical activity
Ligaments – Tough fibrous bands anchoring the bones on either side of the joint and holding the joint together.
Tendons – Are strong fibrous bands or cords that anchor muscles to bones
REM – Rapid Eye Movement sleep is light sleep in which the brain activity is increased and the eyes move rapidly behind the eyelids. It i thought most dreams occur during REM sleep. A normal sleep pattern consists of several cycles of REM sleep and a deeper more restful sleep. REM sleep typically makes up approx 25% of our sleep.
NSIADs – Non-Steroidal Anti-Inflammatory drugs are a large group of drugs prescribed for different kinds of kinds of conditions but mainly ones where pain is predominant. These drugs are known to help with pain, inflammation and swelling and stiffness.